COOL LINKS
It is my sincere belief that
we are stronger as a culture when we network.
Below, we will be continually adding links to
sites we find as we go, to people who respond to
our site and who are working to build our
disability culture. I will try to group sites
into some semblance of organization (no small
feat for me). Hopefully, as time goes on we'll
have a great place for you to go for answers as
well as for folks with interesting philosophies.
If you know of others to add, let us know by
emailing us at wheelchairboy@glasscity.net
QUICK
CLICK TO SECTIONS BELOW:
INDEPENDENT LIVING
AND CENTERS FOR INDEPENDENT LIVING (CIL's)
CURRENT EVENTS
ADVOCACY
ACADEMIA/DISABILITY
STUDIES
AAC (Augmentative
and Alternative Communication), FC (Facilitated
Communication) and AT (Assistive Technology)
Sites
ADVOCATIONAL/EDUCATIONAL
LEGAL CONNECTIONS
DISABILITY SPECIFIC
SITES
LISTSERVS
WEBZINES
MEDIA KITS FOR
PROPER TERMINOLOGY
INCLUSIVE THINKING
WOMEN LIVING
WITHDISABILITIES
FRIEND'S SITES AND
PRODUCTS
MEDITATION SITES
RECREATION and
TRAVEL
STATE SPECIFIC
ADVOCACY/EMPOWERMENT LINKS
ELSEWHERE IN THE
WORLD
SUPPORT
GROUPS/ORGANIZATIONS AND INFORMATION
SEXUALITY AND
DISABILITY
INDEPENDENT
LIVING AND CENTERS FOR INDEPENDENT LIVING (CIL's)
What is Independent
Living (IL) in a nutshell? IL is
basically "getting from Point A to Point B
in life with as little hassle as possible."
It is something we all want to do, as well as
have a right to, whether we live with a
disability or not. Since the world makes the
initial (and big) mistake of delineating between
people with and without disabilities, we've
needed to, as a culture of folks living with
disability, a) unfortunately buy into the
delineation, and b) come up with a philosophy to
follow, to put what goes on in the
"non-disabled" world into some sort of
teachable milieu. IL Philosophy was born because,
until we began taking control of our lives and
our futures, the world chose not to give us an
equal shot at the pie, instead giving us few and
horrible options based on low expectation, fear,
and archaic misconceptions of what "it MUST
be like to live with a disability"; a
tragedy to be sure.
Now, with thirty solid years
of self-advocacy and cultural growth, of
visionaries, rebels and patriots, of villains and
heroes, of laws and more laws, we have options,
more options certainly, but not equality. We have
access but not equal access. We have
independence, but someone else's definition of
independence. As a white, non-disabled male
growing up in America, I knew independence. I did
not know oppression, discrimination, hatred but,
when I rolled my Camaro at 23, I met these
offspring of ignorance head on and suddenly I saw
through bigger eyes. I learned over time that
discrimination is discrimination; that what has
been happening to people living with disabilities
is not unlike what has been happening to our
african-american brothers and sisters, to women
and to gays and lesbians. I see it as the same
struggle, just a different difference. This is
powerful, heady stuff. Our shared oppression
becomes our common ground. We must begin to
seriously take ownership in each other's causes
because, not so deep down, they are the same. If
you feel a Beatle song coming on, good. I know
independence. I know freedom. I know what I want
to get back to and I want to take our disability
culture with me.
Centers for
Independent Living are places where
folks with and without disabilities go for
answers to their disability-related questions.
These centers, over 500 strong, are located
around the country and world and, hopefully,
share similar vision with regard to IL
Philosophy. There are mandates to be followed
which insure adherence to IL Philosophy but, like
anywhere, there will be subtle and maybe not so
subtle differences in how business is conducted.
These centers are run by
folks with disabilities; by experts. Their Boards
and staff are at least 51% people living it. If
you are not connected with a CIL in your area,
check them out. Get involved. We're bigger with
everyone involved. To find the closest CIL to
you, please check out one of these sites. New
CIL's come on board weekly it seems, so, between
these sites, they should be pretty comprehensive:
ILUSA
has
a list of CIL's around the country.
The Design
Link has a big list as well.
Here are a few CIL's
out there with great websites. There are more.
Check them out. Lot's of info and links:
The Ability
Center of Greater Toledo. My CIL
of which I'm damn proud! We've come a long way.
Liberty
Resources in Philly
The Center for
Independent Living in Berkeley, CA
Paraquad, Inc. in
St. Louis, MO
Lakeshore
CIL in Holland, MI
Disability
Resource Center in Kalamazoo, MI
TRIPIL, TriCounty
Patriots for Independent Living in Washington, PA
IndependenceFirst in Milwaukee, WI
SAIL in
Decatur, IL
Hawaii CIL in Honolulu, HI
VIRTUAL CIL Here's a new
twist. A VIRTUAL CIL. Disability Culture meets
the new millennium. Go Kathleen!
NWVCIL The Northern West Virginia
Center for Independent Living (NWVCIL) is
committed to the philosophy that all persons have
equal access and unconditional value, that all
individuals shall be respected for their
uniqueness and shall have the right to live
within the community of their choice, having
equal access to participate in and contribute to
that community.
CURRENT
EVENTS
Just say
"NO" to Jerry. Check out Laura
Hershey and the efforts being made to stamp out
the Smellathon, er, Telethon.
Nick's
Crusade 2003! A web site devoted to
averting a personal disaster. One man's attempt
to bring Medicaid into the 21st century in time
for his 21st birthday. Sign his petition and
more!
ADVOCACY
ADAPT is a powerful
grass roots national organization that is our
driving force for change. They need your body and
your voice.
Not Dead Yet is a non-profit
group watchdogging and coordinating opposition to
Assisted Suicide and Euthanasia issues.
NCIL is the national
organization coordinating the expansion of CIL's
across the country. Moversand shakers, these are
good folks to know.
TASH is a national and
International organziation dedicated to
Inclusion, Human Rights and Social Justice.
AAPD is the American
Association of Persons with Disabilities. They
are working to build coalition among all
disability groups.
ACT/Advocating
Change Together is an organization founded
and maintained by folks with disabilities
advocating through great products, videos,
training programs. Check out their TOOLS FOR
CHANGE page for their great products.
The
Consortium for Citizens with Disabilities is a
coalition of approximately 100 national
disability organizations working together to
advocate for national public policy that ensures
the self determination, independence,
empowerment, integration and inclusion of
children and adults with disabilities in all
aspects of society.
The Center for
Self-Determination is not a place. It is a
highly interactive working collaborative of
individuals and organizations committed to the
principles of self-determination. The purpose of
the collaborative is to change the nature of the
support and service system for individuals with
disabilities, using the principles of
self-determination to help all persons create the
lives they want, connected to and with their
communities.
Mothers
From Hell2 Just like it sounds, a
national grass roots parent advocacy organization
fighting for the rights of individuals living
with disabilities.
National
Organization on Disability promotes the full
and equal participation of America's 54 million
men, women and children with disabilities in all
aspects of life. N.O.D. was founded in 1982 at
the conclusion of the United Nations
International Year of Disabled Persons. Funded
entirely by private sector contributions, N.O.D.
is a national disability network organization
concerned with all disabilities, all age groups
and all disability issues.
Crip
Commentary is Laura Hershey's column
filled with current issues and progressive
insight. A great read.
Disabled
and Proud THIS is Sarah Triano's
heart and soul. It is a site with great
information, great connections and great energy
... a celebration of our Power, our Potential and
our Pride as People Living with Disabilities.
The
National Disabled Students Union (NDSU) is a
national, cross-disability, student organization
that accepts that all disabled people - those
with traditionally recognized disabilities and
those who have often been left out of the
movement - are brothers and sisters in the
struggle, and accepts all students - those who
work to learn, whether or not they are at
recognized schools - as colleagues. Join the
braid.
Find Your
Legislator helps you, well, find your
legislators.
DEC The Division of Early
Childhood of the Council for Exceptional Children
is an international membership organization for
individuals who work with or on behalf of
children with special needs, birth through age
eight and their families.
Institute for
Community Inclusion's Flexible Funding Page This website is intended to
help people use flexible funding to find
and keep the jobs they want. The funding
might come from the Vocational Rehabilitation or
Developmental Disabilities agency in your state,
your school district, or maybe through the Social
Security Administration. The flexiblepart
means that you decide how to use the
funding to get the job you really want.
MindFreedom
Support Coalition International unites 100
grassroots groups and thousands of members to win
campaigns for human rights of people diagnosed
with psychiatric disabilities. MindFreedom
International is where mutual support meets human
rights activism... and where democracy meets the
mental health system.
Disability
Access Symbols The twelve
symbols on this site may be used to promote and
publicize accessibility of places, programs and
other activities for people with various
disabilities.
The Foundation
Center Writing a Grant? Go here.
Really. These folks help grant writers succeed
and grant makers make a difference.
Parents With
Disabilities Online For too long, people with
disabilities had been told that having families
of our own was not an option. The truth is,
though, that we have always been parents, and as
our society evolves, more and more of us will
have access to that opportunity. If you are a parent
with a disability, a person with a
disability who is planning to become a parent,
or anondisabled partner of a disabled parent,
this site is for you. Built and run by my friends
Trish and John Day.
The Association on
Higher Education And Disability (AHEAD)
is
an international, multicultural organization of
professionals committed to full participation in
higher education for persons with disabilities.
The Association is a vital resource, promoting
excellence through education, communication and
training.
SelfAdvocateNet.com The SelfAdvocate Net
assists people with intellectual disabilities to
speak up and have their voices heard by
connecting with family, friends and community
members to advocate for an inclusive and caring
community.
Crip
College is Christian Bagg's site.
It serves an excellent resource for people with
disabilities. You have the opportunity to meet
people from all around the world who share your
frustrations and obstacles in becoming accustomed
to life in a wheelchair. You can find some great
articles that will help give you the support and
motivation you require! Learn new tricks to help
make the mobility in your chair more fun and
convenient! Browse through a ton of really cool
photos! And stay in tune with the latest in
chairs!
ACADEMIA/DISABILITY
STUDIES (an important
partner and resource in our moving forward as a
culture)
The University of
Toledo Disability Studies Program is
housed in the Humanities
The Society
for Disability Studies is a nonprofit
scientific and educational organization
established to promote interdisciplinary research
on humanistic and social scientific aspects of
disability and chronic illness. Its membership
includes social scientists, scholars in the
humanities and disability rights advocates
concerned with the problems of disabled people in
society. The purpose of the society is to bring
together people from diverse backgrounds and
substantive concerns. The Society is committed to
developing theoretical and practical knowledge
about disability and to promoting the full and
equal participation of persons with disabilities
in society.
The Center on
Disability Studies (CDS) was established in
1988 as the Hawaii University Affiliated Program
at the University of Hawaii at Manoa, and is part
of a National Network of University Centers on
Excellence in Disabilities focused upon
Education, Research, and Services.
The
Canadian Centre on Disability Studies has its roots in
Canadian disability organizations, community
groups and representatives from different
faculties at the University of Manitoba. It is a
national centre established to address emerging
disability research and disability studies
curriculum issues.
The Institute on
Disability (IOD) at the University of New
Hampshire was established in 1987 to provide a
University-based focus for the improvement of
knowledge, policy, and practice related to the
economic and social participation of persons with
disabilities in New Hampshire.
AAC
(Augmentative and Alternative Communication), FC
(Facilitated Communication) and AT (Assistive
Technology) Sites
ISAAC This is the web site for
the International Society for Augmentative and
Alternative Communication, a great AAC
organization full of innovative and progressive
thinkers.
FCI/SU This is the web site for
the Facilitated Communication Institute at
Syracuse University. Lots of information, support
and connections.
RESNA This is the site for the
Rehabilitation Engineering and Assistive
Technology Association of North America, an
interdisciplinary association of people with a
common interest in technology and disability,
whose purpose is to improve the potential of
people with disabilities to achieve their goals
through the use of technology.
CLOSING THE GAP This site focuses broadly
on Computer Technology in Special Education and
Rehabilitation. There is literally tons of
information and connection here. They also have a
pretty cool conference every year.
ATOHIO If you live in Ohio, this
is your federally funded Assistive Technology
Project
Assistivetech.net is a national public
Internet site on assistive technology and
disability related resources who's mission is to
improve access to information on assistive
technology and disability resources.
ADVOCATIONAL/EDUCATIONAL
LEGAL CONNECTIONS
Reed Martin is a lawyer and
advocate for primarily children with
disabilities. He has a website with lots of
information and a live chat on Thursday nights.
Wright's Law offers timely
information about special education legal
happenings. Aside from lawyer, Pete Wright is
also a speaker and author. Check out his
suggestions for effective letter writing.
Heberle and
Finnegan This wife and husband team
of Denise Heberle and Mark Finnegan is not well
liked by the opposition. If you have a curb cut
or ADA access/violation case in Ohio,
Pennsylvania or Michigan, call them. You'll be
happy you did.
SSI Red
Book The definitive book on
government and employment. Looking to understand
and work with the system? Start here.
SSI Blog
Spot This blog, hosted by Alan
Tews, is very nice. It is full of current
articles and writings: information necessary to
walking through the quagmire that is the SSI/SSDI
system.
Sheri
R. Abrams is a sole
practitioner emphasizing Social Security
Disability Law, and the preparation of Wills,
Living Wills, Durable Financial Powers of
Attorney and Health Care Powers of Attorney
(Health Care Proxies). Ms. Abrams
serves clients in Virginia, DC and Maryland. Her
legal experience is multi-faceted- including all
aspects of Social Security Disability Law.
DisabilitySecrets.com The purpose of this site is
to distribute information---crucial information
that, nine times out of ten, it's impossible to
get from the person taking your claim for
Disability and ssi benefits offered through the
Social Security Administration. In essence,
applying for disability and ssi benefits might as
well be a secret process since Social
Security does not try to make this information
clear or even understandable. The information,
tips and advice presented here can help you
understand: 1)How to apply for benefits with the
Social Security Administration, 2) How the system
works, 3) What SSA doesn't tell you about the
application and appeal process, 4) What you can
do on your own to help your case, and 5) What you
should never do that might potentially harm your
case.
DISABILITY SPECIFIC
SITES
Autism Ring This site starts with a few
'angelfire' pop-ups but has a great deal of
information on and link leads to issues
pertaining to the Autistic Spectrum.
Getting The Truth
Out
This is a very powerful and personal perspective,
a page by page journey speaking to the many
aspects of living life with Autism. A
"must" visit.
Ballastexistenz This is a personal blog by
a person living with Autism. Again, very
powerful. Full of stories, commentary on
important people and issues, many links, this
blog is about assorted ideas, but mostly deals
with human rights, autistic liberation and
disability rights. **Many links to Bloggers
living with Autism.
Care/Cure This is the
site of the CareCure Community, whose forums
provide the latest information on spinal cord
injury and related conditions.
Central Pain Online Central Pain results from
injury to the central nervous system, such as a
spinal cord injury. Traditional means of reducing
pain, such as narcotics, do not affect the
symptoms of Central Pain. PainOnline provides
information for both patients and physicians
regarding the diagnosis of and the challenges of
living with Central Pain.
DAHRT -
Disabled Americans Have Rights Too! Lots of info on
Polio and Polio Survival. "To raise
awareness about people with disabilities in the
community through education." DAHRT is a
501(c)(3) group that educates and advocates for
the rights of the disabled. The founder and chair
is Joanne Lawrence, lifetime survivor of polio.
She had been pushed around once too often and
decided to fight back by educating about the ADA
requirements and getting ADA compliance where
needed. Failing that, picketing is the next
option. DAHRT is supported by Joanne's savings
and donations from those who believe in DAHRT's
cause.
Dystonia Online The aim of this site, based
in the UK, is to provide a resource for those
suffer from Dystonia - in any shape or form. It
is appreciated that many people with Dystonia may
not have access to/be able to use an
internet-connected PC. In view of this, one of
the projects undertaken by this site is to
produce a book that will be distributed - totally
free of charge - to all those unable to access
the vast range of information about Dystonia that
is available on the internet.
National Spinal Cord
Injury Association (NSCIA) Here is a site
loaded with information and connections. The
mission of The National Spinal Cord Injury
Association (NSCIA) is to enable people with SCI
and diseases to achieve their highest level of
independence, health, and personal fulfillment by
providing resources, services, and peer support.
P.T.E.K. is a parent-driven,
not-for-profit, organization providing education
and support for parents and teachers involved in
the care of behaviorally challenging children.
The idea for P.T.E.K. grew out of our
recognition of the need to exchange ideas and
provide information and support to parents and
professionals living and working with children
with behavioral challenges. The site draws
heavily upon the personal experiences and the
work of Dr. Ross Greene, including his
widely acclaimed book, The Explosive Child
(a revised third edition will be available the
summer of 2004). In this book, Dr. Greene
provides a new perspective for understanding the
challenges these children present and much hope
as he guides one to develop strategies
called the Collaborative Problem Solving (CPS)
approach - for improving our relationships with
them and fostering their development. The site's
goal is to improve the understanding of these
youngsters and increase awareness of and ability
to utilize effective tools, including the
Collaborative Problem Solving (CPS)
approach for improving their lives.
Two Charge Kids has as its goal providing
education and awareness about CHARGE
Syndrome to family, friends and other interested
people. CHARGE Syndrome refers to children with a
specific set of birth defects. "CHARGE"
originally came from the first letter of some of
the most common features seen in these children: C
= coloboma, H = heart defects, A = atresia of the choanae, R
= retardation of growth and development, G
= genital and urinary abnormalities, E
= ear abnormalities and/or hearing loss.
LISTSERVS
Justice For
All is one of the best ways to
keep up on the latest legislation, happenings,
alerts and commentary that affects your life as a
person living with a disability. Get on this
listserv and you are instantly "in the
know". Great archive too.
Mark
Johnson, instrumental spark behind
the Spirit of ADA Torch relay of 2000, has a
great listserv. Working out of Shepherd Spinal
Center in Atlanta, he will keep you as current as
anyone. Personally, I don't think Mark sleeps.
Probably a robot disguised as a guy rolling
around in a chair. email him to get on his list.
WEBZINES
The Ragged
Edge The
successor to one of our Disability Culture's
oldest and best loved publications, the award
winning Disability Rag. Mary Johnson and her
staff of writers have given our movement the
information and wisdom needed to grow such strong
grass-roots. This zine is also available as
"The Disability Rag", the long-standing
hardcopy subscription. There are also books and
compilations of essays and access to our history
through news and story available on this site. A
must book mark.
Mouth Magazine When no one else
would say it, Lucy would. Lucy Gwin, along with
Mary Johnson and the Rag, and very few others,
champions our causes with tenacity. She is afraid
of no one. Every issue, she delivers. And she
delivers BIG, in her own, one-of-a-kind style.
Check out her use of old images and wonderful
cartoons. She also has a store full of cool
revolutionary/evolutionary products. This mag is
also available by hardcopy subscription. Well
worth being in your library.
Disability
World This is a great web mag
dedicated to providing information, stories and
connections about our Disability Culture. There's
a lot to see here.
Disability
Central This is a site and webzine
for teens living with disabilities done by teens
living with disabilities. Cool site with many
stories, links, chat rooms, etc.
Inclusion
Daily Express The site is powered by the
tireless and unflappable Dave Reynolds. Around
since the last century, this zine is a great
source of old and new news collected from around
the world.
New Mobility Here is another
long-running magazine now available online. in
each issue of this mag, developed primarily for
those of us who used chairs to get around (but
topical for our culture, as well), savvy writers
like the uncomparable Josie Bysek, Jean Dobbs,
Mike Ervin, Hugh Gallagher and Dave Hingsburger
really bring our issues to the fore in this slick
monthly. Publisher, Jeff Leonard, and editor, Tim
Gilmer, have really brought this magazine into
its own. This magazine, too, belongs on your
coffee table. Do subscribe. At least go online
and take their monthly poll as a starter.
MEDIA KITS:
ASSISTANCE WITH HELPING THE MEDIA "GET
IT"
National
Center on Disability and Journalism (NCDJ) is
an independent, impartial journalism
organization. Our mission is to educate
journalists and educators about disability
reporting issues in order to produce more
accurate, fair and diverse news reporting. They
are a non-profit organization. To the left you
will see a link to the Style Book.
Beyond
The AP Stylebook This is a
piece put out by The Ragged Edge. Down and Dirty
info to make things simple.
The Ruckus
Society Ruckus is
committed to non-violent social change. This site
is not disability specific. They choose to take
on issues important to making our country and the
world a better place for all of us.
API Disability/Accessibility
Resources This page was developed to
put the media in touch with credible sources on
the disabled and related issues related. Most of
the resources are contributions of Dr. Clyde
Shideler, executive director of CE Disabled
Services in San Luis Rey, Calif., and Marcia
Carlson and Thomas Link of the University of
Wisconsin.
INCLUSIVE
THINKING
PEAK Parent Center in the Springs,
Colorado. Few do it as well. These folks put on
the the best conference in the country for
Inclusive Thinking and Education. A must attend
for anyone: parents, teachers, administrators,
folks with disabilitiies needing a little
rejuvination and brain stretching.
Inclusion Press,
Int'l, out of Toronto. Jack
Pearpoint and friends press on to save the world
from its exclusionary self guided by the spirit
and wisdom of Marsha Forrest and her dream. A
wonderful site for tools, programs, books, tips,
tricks, and professionals to aide you as you
bring progressive and inclusive thinking to your
neck of the woods.
Institute
on Disability (Univ. of NH) Inclusive
thinkers all! These folks have several
publications and projects geared toward
parenting, schooling, working and living
inclusively within our communities. Topics cover
living with a disability at all ages. They also
have some way cool t-shirts with great quotes and
artwork on them. Check out their webpage.
Center on Human
Policy (Syracuse University) These
good folks have been around a long time and have
a wonderful line of disability and diversity
related posters, shirts, etc. that speak to our
connection as fellow human beings. You've
probably seen their classic LABEL JARS, NOT
PEOPLE or STICKS AND STONES CAN BREAK MY BONES
BUT WORDS WILL REALLY HURT ME posters. Call for
their free catalog.
Roots and Wings (An Educational Catalog) A
Woman owned and operated business! Got children?
Students? Anne, Susan and Kate have the most
delicious catalog for books, t-shirts, puppets,
musical instruments and other educational
products from around the world. Products and
books teach children, young and old, about
Inclusion, Peace, Multi Cultural Issues,
Australia, Japan, China, Mexico, The Rain forest,
Parenting, Native Americans, Families, Teaching,
Sign Language and the list goes on. Call for
their free catalog.
WOMEN
LIVING WITH DISABILITIES
Window on
Wellness is a is a quarterly
publication from Ohio that shares the latest in
health and wellness issues for people living with
disabilities, primarily women. They have been
around for quite a while and have an extensive
archive.
Womyn's
Braille Press You can now browse
through WBP's last catalog of over 800 feminist
and lesbian titles on
the Web. Through the
efforts of Jennifer Dunnam, WBP's catalog is now
up on the Web site of
Triangle Braille Services. Go to the site and look under
"other sources" to learn about WBP and
to find out what books the
organization produced. These titles
are housed at the Bureau of Braille and Talking
Book Services in
Daytona Beach, Florida and can be ordered through
regional libraries of
the National Library Service for the Blind and
Physically Handicapped
by anyone registered with this service.
mobileWOMEN.org believes
that disabled women today steer their own lives.
Empowered by knowledge, they are having children,
pursuing careers, competing in professional
sports arenas, becoming community leaders, and
living life to the fullest. Now, at
mobileWOMEN.org there is a place to unite; ask
questions, share ideas, insights, and
experiences, and learn from a variety of
perspectives. mobileWOMEN.org is the creation of
women in wheelchairs who were having difficulty
finding answers to their health, fashion, and
other questions. Our mission is to bring together
current and accurate information on issues of
interest to our community.
FRIEND'S SITES:
WORDS, ART AND PRODUCTS
Crip
Commentary is Laura Hershey's column
filled with current issues and progressive
insight. A great read.
Dance Of
Partnership is the website of one of my
dearest friends, mother, poet and advocate,
Janice Fialka. She, along with husband Rich
Feldman, son, Micah, and daughter, Emma, are a
powerful team in both the disability and peace
advocacy movements. Her books and Micah's DVD
will both inspire you and give you insight into
what is possible when one believes in one's child
and self.
Disabled
and Proud THIS is Sarah Triano's
heart and soul. It is a site with great
information, great connections and great energy
... a celebration of our Power, our Potential and
our Pride as People Living with Disabilities.
DiverseCity Press This is Dave Hingsburger.
What can I say about Dave...Dave lives way up in
Canada where he observes, thinks, writes and
speaks. Dave Hingsburger is an old soul. Through
his writings and lectures he shares with us a
view of the world that most do not see. His
vision of the way people might be better off
thinking about and treating each other is spot
on. Tough questions. Gentle answers. A few of my
favourite "Dave books" can be found on
our "Friends" product page.
Axis Consultation
and Training Ltd. Two more Kindred Spirits,
also from Canada, Norman Kunc and Emma Van der
Klift, operate Axis Consultation and Training
Ltd., from Vancouver Island. Riveting speakers,
Norm and Emma work both together and solo.
Touching on subjects like Inclusion, Conflict
Resolution, Family Supports, and Euthanasia,
their workshops and stories lead us along like a
master dancer leaving us aware, empowered and
wanting to make a difference. Their 5 minute
video, "A Credo for Support" is truly a
gift to the disability rights movement, a
powerful series of suggestions for people who
care about and support someone with a disability.
The words to this video are also available on a
poster. Because the video is comprised solely of
printed words and music, as of this printing,
work is being finished on a new version where
people with disabilities are reading the Credo
aloud with subtitles to accommodate people with
visual and hearing disabilities. Please check
either our "Friends" site (or Norm and
Emma’s) for availability.
Roots and Wings (An Educational Catalog) A
Woman owned and operated business! Got children?
Students? Anne, Susan and Kate have the most
delicious catalog for books, t-shirts, puppets,
musical instruments and other educational
products from around the world. Products and
books teach children, young and old, about
Inclusion, Peace, Multi Cultural Issues,
Australia, Japan, China, Mexico, The Rain forest,
Parenting, Native Americans, Families, Teaching,
Sign Language and the list goes on. Call for
their free catalog.
Moore/Clark:
Pictures that Tell a Story Need a photographer? How
about one of the best? (Yes, Olin, you're one of
the best too. Let's get working on your website)
Anyway, Junebug Clark is one of a kind. He does
all the Jack Daniels Black and white ads you see,
plus much much more. Along with his other buddy
Dan, he has a way of capturing the very essence
of the human spirit. He has worked for Life,
Time, and many more. Have cameras, will travel.
Check out his work.
Serena's Song Like hot
air balloons? How about an ACCESSIBLE hot air
balloon? Gary and his daughter, Serena, have been
friends for a long time. Gary started out to give
a dozen or so kids with disabilities a ride. This
summer he goes over 10,000! He has a great
project and can add fun to your event. Ballooning
isn't cheap and his dream comes out o his own
pocket. If you know anyone looking to support a
cool thing, let them know about Gary, Serena and
their big balloon.
That's Dandy is
a friend of mine from Lansing, Michigan who uses
his disability to his advantage in the
entertainment business.
Earwear is Mimi Shulman's
innovative solution to the boring old hearing aid
sticking out of the ear. She is a hearing aid
wearer herself and has been designing jewellery
for over twenty years in Canada and the US. Check
out her very cool designs.
ACT/Advocating
Change Together is an organization founded
and maintained by folks with disabilities
advocating through great products, videos,
training programs. Check out their TOOLS FOR
CHANGE page for their great products.
Uppity-Disability is Mike Reynold's
site chocked full of info and links.
Beads By A
Deere My friend Barbara Deere
does great beadwork. Necklaces, Bracelets, etc.
Check her out.
Dignity By
Design A very nice site for
Adaptive Clothing by friends from the upper
midwest.
JayAsquini When Jay, a
photographer extraordinaire, fell out of a tree,
his life took an unexpected, more enlightened
path. And he began to paint ...
Works of
Wonder Diane Bellini is a Florida
artist who makes, among many things, great cards
and prints. Very cool.
Jeff Moyer Jeff is an old
friend who has long been a songwriter,
documentarian and troubadour for our movement.
His music touches a cord and his latest effort,
Lest We Forget, a collection of
music, story and recollection, is a must for
everyone wishing to understand the pain, passion
and travesty of living in institutions. This will
move you.\
The Altered
Artist Richmond, Virginia artist
and friend, Krishanna Spencer does inspired work.
Her assemblages, jewelry, books and sculpture are
born from deep inside. Worth a look.
MEDITATION
SITES
Because none of us can
"Save the World" without
"Refueling" here are some sites that
might help. Thanks to my friend Bobby.
MeditationOnline is the Meditation
information site of HolisticOnline, a site
dedicated to the many facets of healing and
well-being.
MeditationWeb has a list of
basic information regarding meditation and
relaxation in their articles section. Meditation
Web is an alternative health resource center for
internet sites relating to meditation, guided
imagery, visualization, self improvement, self
hypnosis, spiritual mind treatment and music
therapy.
Deeshan.com gives you a
Meditation "Tip of the Day".
Dr. Andrew
Weil has a nice section on his
site pertaining to holistic healing and
meditation.
RECREATION
and TRAVEL
FreedomRider is a company
providing all kinds of adaptive Tack Equipment
for folks with disabilities wanting to ride
horses.
Access Able Travel
Source Providing Access
Information for Mature and Disabled Travelers
Online Since 1996.
DisabilityGuide.org Heading to the
Capitol City? DisabilityGuide.org is the
Washington, DC metro area's premiere online
disability information resource, and it's FREE.
Our mission is to create a user-friendly,
information-packed resource targeted at helping
those with disabilities find the information they
need including which restaurants, bars, museums
are wheelchair accessible and which aren't.
The National Alliance for
Accessible Golf was formed in the summer of
2001 by leaders from the golf industry and
representatives of organizations serving people
with disabilities and golfers with disabilities.
The mission of the Alliance is to increase
participation of people with disabilities in the
game of golf.
Accessible Disney This site establishes links
to specific information related to the services
and resources available at the Disneyland Resort
and the Walt Disney World Resort for Guests with
disabilities.
STATE
SPECIFIC ADVOCACY/EMPOWERMENT LINKS
Iowa
Training Consortium Here is a site,
primarily for Iowans with disabilities. It has
great links to other Iowan support groups and
CIL's. Thanks Kristin!
Ohio
Respite Coalition is building a
statewide network of qualified respite providers
for families and agencies needing such support.
Created and developed by parents and families. A
good group of folks growing every day.
Ohio SILC has all the info
for Ohioans regarding CIL's, Town and Network
Meetings, and our Statewide IL Plan.
SPAN
Located in New Jersey, the
Mission of the Statewide Parent Advocacy
Network is to empower families and inform and
involve professionals and other individuals
interested in the healthy development and
educational rights of children. Through this
collaboration, all children will become fully
participating and contributing members of our
communities and society.
The Tennessee
Disability Coalition ("The Coalition")
promotes the full and equal participation of men,
women and children with disabilities in all
aspects of life. Seven disability advocacy groups
committed to collaboration founded the Coalition
in 1984. The Coalition is the only statewide
disability network organization concerned with
all disabilities, all age groups and all
disability issues. We have grown to include 45
disability organizations working together to
advocate for public policy that ensures self
-determination, independence, empowerment,
integration and inclusion of individuals with
disabilities in all aspects of society.
NWVCIL The Northern West Virginia
Center for Independent Living (NWVCIL) is
committed to the philosophy that all persons have
equal access and unconditional value, that all
individuals shall be respected for their
uniqueness and shall have the right to live
within the community of their choice, having
equal access to participate in and contribute to
that community.
The PATINS Project (Promoting
Achievement through Technology and INstruction
for all Students) is an Indiana Department of
Education assistive technology systems change
initiative.
Real Estate for
Disabled.com Ron Snarskis sells
accessible homes in the Tampa, Florida area and
along the sun coast. If your looking in the area,
give him a call.
ELSEWHERE
IN THE WORLD
TurnAround Disability Awareness,
Training, Education and Consultation for folks
living with disabilities in the UK. These guys
have a nice site filled with information
regarding England and the Isles.
Youreable was founded by Joe Rajko, a
charity worker from Leeds, after winning the
Channel 4 eMillionaire show in July 2000.
Youreable has integrated information, products
and services into a community-based website.
Since launch, more than one million people have
visited the site to download over 3,500 pages of
information across 17 different channels and to
participate in 12 topic forums. On 1 August 2002
Youreable began trading on the London stock
exchange AIM market as Bright Futures Group PLC,
becoming the first time a website for disabled
people has floated on the stock market.
SUPPORT
GROUPS/ORGANIZATIONS AND INFORMATION
ExceptionalNurse One of the sad ironies of
health care is how they treat their rank and file
when they suddenly acquire disability in their
lives, especially nurses, who are the frontline
soldiers and backbone of healthcare. Many are
terminated immediately or otherwise (and
insideously) forced out of the profession they
love so much. This website was started to meet
some of the needs of nurses and nursing students
with disabilities. It provides links to
disability-related organizations, financial aid,
technology, equipment, mentors, employment
opportunities, legal issues, research and
featured articles.
National Spinal Cord
Injury Association (NSCIA) Here is a site
loaded with information and connections including
to local chapters. The mission of The National
Spinal Cord Injury Association (NSCIA) is to
enable people with SCI and diseases to achieve
their highest level of independence, health, and
personal fulfillment by providing resources,
services, and peer support.
Disabled
Americans Have Rights Too (DAHRT) This site has an
extensive Links page as well as a message board.
SEXUALITY AND
DISABILITY
SexSupport.Org Every person
experiences sexuality differently and needs
different information. Most of what is available
regarding sexuality and disability on websites is
not easily accessed by those whose disabilities
impair their ability to read. This site is
designed to meet the needs of these people and
the people who care about them - personally or
professionally. Note: Teenagers are welcome to
use this site to learn the facts about sex and
relationships. Although initially designed for
persons with disabilities, it has expanded to
include any person who wants to participate.
The Sexual Health
Network is dedicated to providing
easy access to sexuality information, education,
mutual support, counseling, therapy, healthcare,
products and other resources for people with
disabilities, illness, or natural changes
throughout the lifecycle and those who love them
or care for them.
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